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My experience and your feedback please

For sharing your experiences and feelings about mental illness
jgregg
Posts: 4
Joined: Sun Sep 30, 2018 12:06 pm

My experience and your feedback please

Postby jgregg » Sun Sep 30, 2018 12:39 pm

Hello

I’d appreciate your time in reading my experience and any wise words you can offer.

I am 56 and been suffering from anxiety and depression for around twenty years. I’ve been taking Citalipram 20mg for most of that time. The past twelve months I have taken a dip and my anxiety and depression has been much worse. My main symptom has been really bad fatigue. Even just walking around the supermarket, I get and overwhelming tiredness. I have seen my GP on a number of occasions, having a wide range of blood tests, Heart checks, endoscopy’s etc. The GP feels quite strongly that the symptoms are all connected with depression.

I have had some counselling and tried very hard with CBT techniques which help my anxiety to some extent. My wife and Incame to the conclusion that I need to get specialist advice, so I paid to see. Clinical pyschiatrist. After our initial discussion, he felt that my problem was depression and that counselling, whilst helpful, is not enough. He also felt that the Citalopram and other SSRIs I’ve tried (sertraline, fluoxetine) are not doing the job. He prescribed me an SNRI Venlafaxine. I took it for a month and having had the most awful aide effects, he instructed me to stop them and take break for week before going onto another drug. (That week was also a week from hell with no medication) I then tried a fairly new AD Vortioxetine. Having only taken it for 10 days, once again the side effects wre crippling. The Pyschiatrist was concerned that I’d had such a reaction and told me to stop this drug. He said if I can manage it, try to stay a couple of weeks without drugs until my next scheduled appt. with him. But if I were struggling not to hesitate getting in touch with him.

Thi# is where I am at now, I’ve been off them a week, with one week to go until I see him. I feel absolutely dreadful..a physical wreck. Extreme fatigue (worse than my original fatigue) dizziness, nausea, aches pains. I can’t really get out and of course all of this just adds to my depression. I have read com numerous sources that adjusting to ADs and coming off them can give a wide range of symptoms. Trouble is, I don’t kno if how a I feel is my original depression, the recent drug trials, albeit they were short, or having no drugs at all in this interim period..all perhaps all three!

I’m sceptical that there will be a way forward and the right meds. for me. I appreciate I have to be patient and that some people have to go through many options before they get better. I feel so ill, I struggle to see light at the end of the tunnel. I want to get my life back on track and feel joy in everyday things, but lately, it’s been a very tough road.

Thanks for reading

christabel
Posts: 2106
Joined: Sat Nov 29, 2014 4:49 am

Re: My experience and your feedback please

Postby christabel » Sun Sep 30, 2018 8:02 pm

Hi jgregg

Just showing support as I've been similar myself whilst trying to find the right medication for me.

Im sure the medical professionals have no concept of the torture we go through sometimes.

I know it is not much help but try to have plenty fluids ( water) and I hope you get sorted soon.
Chris

sammy
Posts: 13
Joined: Thu Aug 23, 2018 1:26 am

Re: My experience and your feedback please

Postby sammy » Sun Sep 30, 2018 8:50 pm

Hi,

It is always really hard changing medication especially when they're meant to help but they don't seem to be in the meantime.

I really hope that you start seeing improvements soon and that you can come back to this forum with some good news. Remember its always here to vent to.

Best wishes x

jgregg
Posts: 4
Joined: Sun Sep 30, 2018 12:06 pm

Re: My experience and your feedback please

Postby jgregg » Sun Sep 30, 2018 11:22 pm

christabel wrote:Hi jgregg

Just showing support as I've been similar myself whilst trying to find the right medication for me.

Im sure the medical professionals have no concept of the torture we go through sometimes.

I know it is not much help but try to have plenty fluids ( water) and I hope you get sorted soon.
Chris


Thank you Chris. I agree with your point in line two.

jgregg
Posts: 4
Joined: Sun Sep 30, 2018 12:06 pm

Re: My experience and your feedback please

Postby jgregg » Sun Sep 30, 2018 11:23 pm

sammy wrote:Hi,

It is always really hard changing medication especially when they're meant to help but they don't seem to be in the meantime.

I really hope that you start seeing improvements soon and that you can come back to this forum with some good news. Remember its always here to vent to.

Best wishes x


Thanks for your support.

Isap
Posts: 1843
Joined: Fri Feb 06, 2015 1:13 pm

Re: My experience and your feedback please

Postby Isap » Mon Oct 01, 2018 6:08 am

Hi there

Im in the process now of a change in drug and can feel your pain.

There are still many AD options out there.
I was on venlafaxine and the side effects were crippling. A psychiatrist said you should take with a benzo for 2-3 weeks.

You could try duloxetine a more benign SNRI

There is also mirtazapine which often works when nothing else does.

Then the old tricyclics like lofepramine and tofranil.

Finally the oldest MAOI which may have some modern versions.

Tbh I dont understand theae two week waiting periods. Its pretty safe to start a new med straight after stopping another, or 2 days maximum.

Youll be ok, just hang on in there. You have a supportive wife which is fantastic.

Isap

jgregg
Posts: 4
Joined: Sun Sep 30, 2018 12:06 pm

Re: My experience and your feedback please

Postby jgregg » Mon Oct 01, 2018 12:08 pm

Isap wrote:Hi there

Im in the process now of a change in drug and can feel your pain.

There are still many AD options out there.
I was on venlafaxine and the side effects were crippling. A psychiatrist said you should take with a benzo for 2-3 weeks.

You could try duloxetine a more benign SNRI

There is also mirtazapine which often works when nothing else does.

Then the old tricyclics like lofepramine and tofranil.

Finally the oldest MAOI which may have some modern versions.

Tbh I dont understand theae two week waiting periods. Its pretty safe to start a new med straight after stopping another, or 2 days maximum.

Youll be ok, just hang on in there. You have a supportive wife which is fantastic.

Isap


Thanks for your support and feedback. The waiting period is partly to do with the Pyschiatrists availability. He also thought that the gap might level things out a little..though I not convinced.

Isap
Posts: 1843
Joined: Fri Feb 06, 2015 1:13 pm

Re: My experience and your feedback please

Postby Isap » Mon Oct 01, 2018 12:22 pm

Presumably you had to pay your own money to be told a lot of baloney. Some of these psychiatwits arent worthy of the name.

The best psychiatrist I ever met was a Nigerian trainee at ER. Then a part timer in Japan from Fukushima who spent most of her time working free as a volunteer

"level things out" my foot

cookiemonster
Posts: 135
Joined: Tue Jul 31, 2018 2:26 pm

Re: My experience and your feedback please

Postby cookiemonster » Mon Oct 01, 2018 12:41 pm

I’m sorry you are having this experience. It sounds you like a proper review. Stopping and starting meds will really mess with your body and mind.


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