Search

Support Forum

SANE Support Forum

See you post on another website

Sometimes you just need to let off steam...
Cyprus
Posts: 352
Joined: Mon May 26, 2014 10:05 pm

See you post on another website

Postby Cyprus » Sun Dec 03, 2017 2:12 am

I have just seen my post on a website found it really disturbing assist realise that would happen I give details on here as I feel safe ow my trust is gone why

andthistoomustpass
Posts: 955
Joined: Wed Nov 02, 2016 11:02 pm

Re: See you post on another website

Postby andthistoomustpass » Sun Dec 03, 2017 5:52 am

Hi

That's odd and a little worrying. Which site? Was it posted by a member there who had copy pasted your post or did it look like some sort of official link with SANE?

Cyprus
Posts: 352
Joined: Mon May 26, 2014 10:05 pm

Re: See you post on another website

Postby Cyprus » Sun Dec 03, 2017 10:20 am

It was a post I wrote this week

Cyprus
Posts: 352
Joined: Mon May 26, 2014 10:05 pm

Re: See you post on another website

Postby Cyprus » Sun Dec 03, 2017 10:20 am

And I didn’t repost it

Cyprus
Posts: 352
Joined: Mon May 26, 2014 10:05 pm

Re: See you post on another website

Postby Cyprus » Sun Dec 03, 2017 10:23 am

Treato

andthistoomustpass
Posts: 955
Joined: Wed Nov 02, 2016 11:02 pm

Re: See you post on another website

Postby andthistoomustpass » Sun Dec 03, 2017 10:48 am

Hi Cyprus

I took a look at their site and it looks like they have an automated bot which trawls health related forums looking for key words and pinches posts to promote their invasive business. I doubt very much that they have permission for this from SANE.

You could try complaining to SANE supportforum@sane.org.uk giving them a link to the post Treato has taken of yours. They may be able to stop this company from trawling this site technically or be able to contact them and tell them to stop legally. Tell SANE you want a response. I have had good responses from this email address before now.

Taken from Treato website:
"Treato automatically collects, indexes and analyzes the massive amount of content patients and caregivers generate online" "The information reflected here is dependent upon the correct functioning of our algorithm"

amaya
Posts: 609
Joined: Sun Oct 08, 2017 9:23 pm

Re: See you post on another website

Postby amaya » Sun Dec 03, 2017 12:34 pm

That's horrifying. What a bunch of scumbags to use personal information without asking.

I hope Sane can do something to protect what we post as I wouldn't want this to happen to me or anyone else.

*hugs* Cyprus

Isap
Posts: 1367
Joined: Fri Feb 06, 2015 1:13 pm

Re: See you post on another website

Postby Isap » Sun Dec 03, 2017 1:25 pm

I had a look at that Treaty website and its creepy
Based in Israel

Cyprus
Posts: 352
Joined: Mon May 26, 2014 10:05 pm

Re: See you post on another website

Postby Cyprus » Mon Dec 04, 2017 2:40 am

It’s just personal and I know this is open for us to talk but always felt safe this is making me feel uncomfortable xx

andthistoomustpass
Posts: 955
Joined: Wed Nov 02, 2016 11:02 pm

Re: See you post on another website

Postby andthistoomustpass » Mon Dec 04, 2017 7:17 am

Hi Cyprus

It would make me uncomfortable too. The other site seems to exist to sell information to drug companies. Did the post they stole name a drug? If the answer is yes then so long as we are careful about when we name specific medications or drug companies they should have no interest is stealing our posts.


Return to “Rant Room”

Who is online

Users browsing this forum: No registered users and 2 guests