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Important notice from the Institute of Psychiatry at King's College London about the EU-GEI study
Added: 20th Apr 2017

At the request of the Institute of Psychiatry at King's College London, SANE is posting this notice about the Identifying Genetic and Environmental Interactions in Psychosis - EU-GEI study on their behalf.

It reads as follows:

"The EUGEI study is now coming to an end and we would like to thank all of those who took part.

"Unfortunately, over the course of the study, we lost touch with many of the original participants and we were unable to make contact with them to arrange the final two-year follow-up assessment.

"Therefore, to conclude the study, we have applied for Section 251 approval from the Confidentiality Advisory Group of the Health Research Authority and for further permission from NHS Digital to use some of the data collected (i.e. name, date of birth, previously known address and NHS number) to follow-up some of the participants that we lost touch with.

"This information will be sent securely to NHS Digital, and in return we would receive up-to-date contact information and death registration data, for the individuals who took part in the study at the time that they were under the care of South London and Maudsley NHS Foundation Trust.

"The statistical analyses of this data will produce tabular and/or graphical results where no participant of the study can be identified.

"If you think that you participated in the EUGEI study between 2010 and 2017 at the Institute of Psychiatry, Psychology and Neuroscience, King’s College London (Denmark Hill) and you wish to find out more, or you wish to opt out of your data being used for this purpose, please email matthew.kempton@kcl.ac.uk."

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